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Posts Tagged ‘Genetics’

Hey, God…

Today I read about a new drug that is showing promise in helping to “cure” Down syndrome. Do we really want to change those things that have been made perfect in Your image? You have said that our wisdom is but foolishness…and indeed, one can see the beauty and love in the face of any child with Downs, Your beauty, Your love. In weakness is Your strength, and many people have come to You through weaker people, as You touch us through them. They humble us, they teach us, they remind us of our priorities.

If people with disabilities did not exist, how would we learn and be humbled? What, then, would the order of our priorities be?

It is touted as scientific breakthrough, but at what point do we restrain ourselves from assuming we know what is best for another creation, just because they are different? Are we projecting our own fears upon them by thinking they must be suffering, when they may actually be perfectly content?

How can we possibly judge another’s perception of their quality of life?

Or are such “cures” merely for our convenience, to allay our fears and insecurities about suffering?

I am reminded of my food allergies, one of which is shellfish (ironically, despite my love of the sea). When others learn that I cannot eat, say, shrimp, I am inundated with expressions of pity and presumption, such as, “Oh, you poor thing! How awful for you! I bet that must be so hard not to be ABLE to eat shrimp!!!”

I don’t think of it as a disability…since the only shrimp I have tasted has caused such trauma and discomfort, I do not yearn for it; I am perfectly happy without it. It is not a pleasant thing for me to regret and miss, since I have not walked on the side of enjoying it. I am blissfully ignorant of the experience, thank you very much, and am perfectly happy with the rest of my diet.

Could it be the same for some others with certain disabilities, that they are entirely complete and fulfilled in the way they have been wonderfully made? Should we not carefully consider what projections we may have when we seek to “help” others and find cures?

Too, suffering has its place. It is not often sought, nor is it bearable many times…yet it blesses with gifts such as perseverance, tolerance, new coping skills, heightened sensory perception and deeper insight into others’ character and virtue, as well as our own. We find out quickly who our friends are, in our suffering.

Here on the seashore, I find broken shells, some of which are absolutely more interesting and beautiful than had they remained wholly intact. In the broken shells, you can see what they’re made of, you can see farther into them, you can see things you can’t see in their unbroken state. They are like snowflakes, each one entirely different from any other….a beautifully abstract medium that begs the imagination to fill in the spaces of its journey, its life, its purpose. The broken shell forces us to focus on those things outside our comfort zones, stretching and molding and growing us in ways we had not considered before. It demands that we pick it up and focus on it, instead of ourselves, instead of on the ideal, instead of on the perfect. Do we toss it back into the sea because it does not meet our standards?

God, may we have wisdom about and sensitivity to Your will. May we have the courage and zeal to embrace those things which we deem as difficult, painful and imperfect. May we resist the temptation to tamper with that which You have willed.

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